Monday, February 23, 2009
Last night I had this horrible pain in my chest and ribs and back and pelvis and I just couldn't get any relief from the pain, so I had to call the after hours BMT clinic and they advised me what to do to control some of the pain. When I asked them what would be causing me so much pain, they said sometimes the nulasta shot which they give you to help boost the immune system will cause that pain. I went to the clinic this morning to do my labs and I told the girls if the pain I had last night was any indication of the "boost" my immuine system got I would probably be in the 10,000 mark on my white cells! The day before my white blood cell count was 0.63, which showed signs of improving, but I wasn't engraft. Well today when the labs came back, my white cell count was 8.31. Crazy! I am now engrafted, and will see the Dr. tomorrow and hopefully get the ok to return back home. My throat is feeling much better and I am so happy I didn't have to stay in the hospital! In my mind this good news is nothing short of a miracle because of the many many prayers that have been given in behalf of our family. We love you all. As a family we continue to pray for all of you in your individual circumstances and trials.
Wednesday, February 18, 2009
Today is day +5, it starts the beginning of the "critical" days. I just got back from the clinic and I received and A+ on my report card. My labs all looked great. The PA was very optimistic about how everything is going and so I am excited to be this far along in the process and have such a positive report. My dear sister Becca, has been such a good caregiver, I give full credit to her for my good fortune. The rest of the week will include a daily trip to the clinic and the hope is to start to see the stems engraft by Monday.
Monday, February 16, 2009
The stems cells were infused on Friday and we moved into the apartment the same day. I was especially tired on Friday, maybe because they put a few more million stems cells in than the last time, but everything seems to be going good. My white count has dropped a lot faster than it did before, so I seem to be feeling a bit more effect of the chemo early on. Today I will go to the clinic to have some lab work done and then as a new precaution, on Wednesday I will go to the clinic and receive a shot of an antibiotic to keep me from getting an infection. Thursday, I will get a shot that will help build my immune system and Friday my stem cells should start to engraft. I will try and keep you all posted. Love ya Lots!
Tuesday, February 10, 2009
Yesterday I got my first regimen of Chemotherapy. It started with a dose of Carmustine given through an IV and it took about 2 hours. The carmustine is a mean Chemo. I had a little reaction to it, but it's all good now. Next they gave me a dose of Bortezomib, and finally another two hour drip of Gemcitabine. The amazing thing to me is today I feel really pretty good. I know it takes a few days for the Chemo to take its full effect and I am now in isolation here at home, not going any where and staying as far away from germs as I possibly can. I also get tomorrow off and then I will move up to Salt Lake on Thursday and recieve another dose of the same Chemo except instead of Carmustine, I get the ever dreaded Melphalan. Hopefully that will be the end of it for a while. I love you all!
Monday, February 9, 2009
Today, Monday February 9, 2009 I begin the chemo for the second stem cell transplant. I saw the Dr. last week. After looking at the results from my bone marrow biopsy, he said he felt real confident that with this second transplant they could put me into a full remission. That was good news for our family. I have been extremely anxious about starting this second transplant. I guess it is like having a baby. You get to the end of the pregnancy and realize what is coming in order to get the baby here and you start to question why you thought it would be nice to have another child! Because I have some idea of what is ahead I get a little nervous. But, by spring I should be feeling really good and be healthier than I have been for a while. I don't have to move up to Salt Lake until the end of the week. Friday, February 13 (I guess I should wear garlic around my neck) they will infuse the stem cells and then they want me to be close to the Huntsman Center for the next 3 weeks. Fortunately, we will be staying in the same place we stayed the first time, very close to the HCI. We continue to feel optimistic about our circumstances and appreciate the support we receive from all of our family, friends and ward members. We hope and pray that all of you are finding joy in the journey you are on at this time in your lives. My testimony of Heavenly Father and his son Jesus Christ has increased. I look back on this experience with no regrets, only gratitude for what I have been able to learn. I will however, be glad when this is all over and life can get back to normal, whatever normal is!