Monday, February 23, 2009
Wonder of Wonder Miracle of Miracle!!
Last night I had this horrible pain in my chest and ribs and back and pelvis and I just couldn't get any relief from the pain, so I had to call the after hours BMT clinic and they advised me what to do to control some of the pain. When I asked them what would be causing me so much pain, they said sometimes the nulasta shot which they give you to help boost the immune system will cause that pain. I went to the clinic this morning to do my labs and I told the girls if the pain I had last night was any indication of the "boost" my immuine system got I would probably be in the 10,000 mark on my white cells! The day before my white blood cell count was 0.63, which showed signs of improving, but I wasn't engraft. Well today when the labs came back, my white cell count was 8.31. Crazy! I am now engrafted, and will see the Dr. tomorrow and hopefully get the ok to return back home. My throat is feeling much better and I am so happy I didn't have to stay in the hospital! In my mind this good news is nothing short of a miracle because of the many many prayers that have been given in behalf of our family. We love you all. As a family we continue to pray for all of you in your individual circumstances and trials.
Wednesday, February 18, 2009
A +
Today is day +5, it starts the beginning of the "critical" days. I just got back from the clinic and I received and A+ on my report card. My labs all looked great. The PA was very optimistic about how everything is going and so I am excited to be this far along in the process and have such a positive report. My dear sister Becca, has been such a good caregiver, I give full credit to her for my good fortune. The rest of the week will include a daily trip to the clinic and the hope is to start to see the stems engraft by Monday.
Monday, February 16, 2009
Day +3
The stems cells were infused on Friday and we moved into the apartment the same day. I was especially tired on Friday, maybe because they put a few more million stems cells in than the last time, but everything seems to be going good. My white count has dropped a lot faster than it did before, so I seem to be feeling a bit more effect of the chemo early on. Today I will go to the clinic to have some lab work done and then as a new precaution, on Wednesday I will go to the clinic and receive a shot of an antibiotic to keep me from getting an infection. Thursday, I will get a shot that will help build my immune system and Friday my stem cells should start to engraft. I will try and keep you all posted. Love ya Lots!
Tuesday, February 10, 2009
The battle begins again
Yesterday I got my first regimen of Chemotherapy. It started with a dose of Carmustine given through an IV and it took about 2 hours. The carmustine is a mean Chemo. I had a little reaction to it, but it's all good now. Next they gave me a dose of Bortezomib, and finally another two hour drip of Gemcitabine. The amazing thing to me is today I feel really pretty good. I know it takes a few days for the Chemo to take its full effect and I am now in isolation here at home, not going any where and staying as far away from germs as I possibly can. I also get tomorrow off and then I will move up to Salt Lake on Thursday and recieve another dose of the same Chemo except instead of Carmustine, I get the ever dreaded Melphalan. Hopefully that will be the end of it for a while. I love you all!
Monday, February 9, 2009
We begin again
Today, Monday February 9, 2009 I begin the chemo for the second stem cell transplant. I saw the Dr. last week. After looking at the results from my bone marrow biopsy, he said he felt real confident that with this second transplant they could put me into a full remission. That was good news for our family. I have been extremely anxious about starting this second transplant. I guess it is like having a baby. You get to the end of the pregnancy and realize what is coming in order to get the baby here and you start to question why you thought it would be nice to have another child! Because I have some idea of what is ahead I get a little nervous. But, by spring I should be feeling really good and be healthier than I have been for a while. I don't have to move up to Salt Lake until the end of the week. Friday, February 13 (I guess I should wear garlic around my neck) they will infuse the stem cells and then they want me to be close to the Huntsman Center for the next 3 weeks. Fortunately, we will be staying in the same place we stayed the first time, very close to the HCI. We continue to feel optimistic about our circumstances and appreciate the support we receive from all of our family, friends and ward members. We hope and pray that all of you are finding joy in the journey you are on at this time in your lives. My testimony of Heavenly Father and his son Jesus Christ has increased. I look back on this experience with no regrets, only gratitude for what I have been able to learn. I will however, be glad when this is all over and life can get back to normal, whatever normal is!
Tuesday, December 30, 2008
Gearing up for the next uphill climb
I went to see Dr. Tricot on Monday, yesterday, and he said it is time to get prepared for the second transplant. Seriously, I had secretly hoped that he would tell me I didn't need the second one, but what fun would that be? He wants to get going asap so I will head up to Salt Lake the end of January and begin a similar process as to what I have just completed.
I have had such a fun Christmas. All the kids were home except Colton and Megan. It was nice to have a three year old in the house again for Christmas. It just makes everything so much more exciting.
The YM and YW in our ward made a video of a few incidents in my life and brought it over for us to enjoy. Our ward really has some great acting talent. It was so much fun to watch and we all had a good laugh. The Bishop was especially impresive. Thanks to all who put so much time and effort into the making of the film!!
My cousin Chrisann sent me a copy of a talk "The Character of Christ" by Elder Bednar, that I read this past week and it has really inspired me. He quoted Elder Maxwell who said, "There would have been no Atonement except for the character of Christ." Elder Bednar then went on to talk about character and what the definition of character is. A couple of things he said that impressed and motivated me were, "Character is revealed in the power to discern the suffering of other people when we ourselves are suffering, in the ability to detect the hunger of others when we are hungry; and in the power to reach out and extend compassion for the spiritual agony of others when we are in the midst of our own spiritual distress. Thus, character is demonstrated by looking and reaching outward when the natural and instinctive response is to be self-absorbed and turn inward."
Christ was a perfect example of such character. These thoughts have motivated me to try to improve my character and become more like Christ. It becomes so easy when you are in the middle of a crisis to only think of yourself. Life is so much better when you think of others and forget yourself.
Here is wishing everyone a Happy New Year. Thanks again and again for the many kind thoughts and acts of service that have been done for us in the past and over the Christmas Holiday. We love you all.
I have had such a fun Christmas. All the kids were home except Colton and Megan. It was nice to have a three year old in the house again for Christmas. It just makes everything so much more exciting.
The YM and YW in our ward made a video of a few incidents in my life and brought it over for us to enjoy. Our ward really has some great acting talent. It was so much fun to watch and we all had a good laugh. The Bishop was especially impresive. Thanks to all who put so much time and effort into the making of the film!!
My cousin Chrisann sent me a copy of a talk "The Character of Christ" by Elder Bednar, that I read this past week and it has really inspired me. He quoted Elder Maxwell who said, "There would have been no Atonement except for the character of Christ." Elder Bednar then went on to talk about character and what the definition of character is. A couple of things he said that impressed and motivated me were, "Character is revealed in the power to discern the suffering of other people when we ourselves are suffering, in the ability to detect the hunger of others when we are hungry; and in the power to reach out and extend compassion for the spiritual agony of others when we are in the midst of our own spiritual distress. Thus, character is demonstrated by looking and reaching outward when the natural and instinctive response is to be self-absorbed and turn inward."
Christ was a perfect example of such character. These thoughts have motivated me to try to improve my character and become more like Christ. It becomes so easy when you are in the middle of a crisis to only think of yourself. Life is so much better when you think of others and forget yourself.
Here is wishing everyone a Happy New Year. Thanks again and again for the many kind thoughts and acts of service that have been done for us in the past and over the Christmas Holiday. We love you all.
Wednesday, December 10, 2008
On Top of Rocky Ridge
Hurray!! I think I finally made it to the top of the hill and it was definately not a fun climb!! Yesterday I woke up and just felt different. I could tell that things were going to go in a positive direction and I have been almost 2 days now without a fever. If I get through the night, I believe the Doctor will let me go back to the apartment for a few days and then hopefully I will be in Alpine by Saturday or Sunday.
The past two weeks have been probably the hardest two weeks of my life, I really just want to think of it as a bad dream. I didn't prepare myself for what I experienced, but I don't know if you really could prepare for something like that. I decided I would focus on the positive of it all, and want to share just a few of those positives with you. 1. I met some really great, fun, caring people here on the BMT unit and Iwill always have a soft spot in my heart for their kindness and superior care. 2. I came to appreciate so much more the level of suffering that the Savior did in the garden of Gethsemene. At times when I thought I couldn't bare the burden, I thought of him and knew that he understood my pain and I felt his love and understanding. 3. I continued to be uplifted by the prayers I knew were being said in my behalf. 4. I experienced first hand again as I have so many times already, the tremendous power of the Priesthood. I am so thankful for a good husband that holds the priesthood and is able to call upon that great power at any moment to bless my life. 5. I have loved watching my children pull together to take care of one another and the needs at home. I know they are closer to one another now than they have been at any time in their life.
I could continue on and on and I have come to understand that with any trial there is always a positive if we look to find it. Now, with that being said, I am soooooo glad to be where I am and have the past two weeks behind me.
I look forward to returning home, being with my family, seeing my new grandbaby and getting a good laugh from my other grandson. I think there is nothing better than grandbabies. A few weeks ago Lucas ( my oldest grandson) wanted me to take him to Cabela's. I was loading him in the car and he said Grandma Owens, lets go to Chuckie Cheese it's more fun. I said "Lucas, I can't take you to Chuckie Cheese, I don't even know how to get there." He said, "Grandma Owens, you just follow the road!" Needless to say we followed the road and sure enough we found Chuckie Cheese!
Have a great Holiday. I love you all. Many Thanks!!
The past two weeks have been probably the hardest two weeks of my life, I really just want to think of it as a bad dream. I didn't prepare myself for what I experienced, but I don't know if you really could prepare for something like that. I decided I would focus on the positive of it all, and want to share just a few of those positives with you. 1. I met some really great, fun, caring people here on the BMT unit and Iwill always have a soft spot in my heart for their kindness and superior care. 2. I came to appreciate so much more the level of suffering that the Savior did in the garden of Gethsemene. At times when I thought I couldn't bare the burden, I thought of him and knew that he understood my pain and I felt his love and understanding. 3. I continued to be uplifted by the prayers I knew were being said in my behalf. 4. I experienced first hand again as I have so many times already, the tremendous power of the Priesthood. I am so thankful for a good husband that holds the priesthood and is able to call upon that great power at any moment to bless my life. 5. I have loved watching my children pull together to take care of one another and the needs at home. I know they are closer to one another now than they have been at any time in their life.
I could continue on and on and I have come to understand that with any trial there is always a positive if we look to find it. Now, with that being said, I am soooooo glad to be where I am and have the past two weeks behind me.
I look forward to returning home, being with my family, seeing my new grandbaby and getting a good laugh from my other grandson. I think there is nothing better than grandbabies. A few weeks ago Lucas ( my oldest grandson) wanted me to take him to Cabela's. I was loading him in the car and he said Grandma Owens, lets go to Chuckie Cheese it's more fun. I said "Lucas, I can't take you to Chuckie Cheese, I don't even know how to get there." He said, "Grandma Owens, you just follow the road!" Needless to say we followed the road and sure enough we found Chuckie Cheese!
Have a great Holiday. I love you all. Many Thanks!!
Subscribe to:
Posts (Atom)